If you receive an invitation from PatientsKnowBest asking you to sign in for their services, my advice would be not to bother. You will be ripping your hair out in five minutes flat. The registration... ãã£ãšèŠã
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They continualy send me appointments that are of the incorrect times mostly at night because for some reason my address was in Brisbane and not in Brighton UK so the appointments are wrong. I have go... ãã£ãšèŠã
I had problems signing in and reached out to Patients Know Best Support. They were very quick in responding and provided easy to follow steps enabling me to access my info. A super team in my opinio... ãã£ãšèŠã
Both yesterday and today I submitted an eConsult querying my new medication and I got answers to both queries I had on the same day. What more could you ask for?!
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Patients Know Best (PKB) is Europeâs largest personal health record platform, enabling patients and healthcare professionals to access real-time health information - anytime, anywhere. As the worldâs first patient-controlled personal health records system, PKB facilitates borderless, integrated care wherever the patient needs it. That means any healthcare provider, whether in another area of the country or another part of the world, can immediately access all the information they need to support improved clinical decision making and the best patient care. Everything from test results, care plans, real-time monitoring data and discharge summaries, to the patientâs own data - either uploaded from their journal, wearable devices or using symptom tracking, are all available in one patient record. This also reduces the need for professionals to request background information from the patientâs regular healthcare team. In 2020, PKB became the first personal health record (PHR) to integrate with Englandâs national health platform - the NHS App. This extends the NHS Appâs current features and sharing of GP data, to allow patients to access PKBâs full health and care record and functionality, direct from the national NHS interface. For more information on the features and benefits of Patients Know Best, visit www.patientsknowbest.com or email enquiries@patientsknowbest.com.
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Cowley Road, CB4 0WS, Cambridge, è±åœ
- help@patientsknowbest.com
- www.patientsknowbest.com
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IT Dept Were Great !
For my recent minor case all communications and my treatment went perfectly. I could not be happier. Then I get a tricky IT glitch and you would think it would take forever (or never) to sort out but..âŠ.it was fixed really quickly and Peaches / IT dept were incredibly helpful. Clear proof to all the complainers that there is good work going on behind the scenes!
2026幎1æ8æ¥
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Patients Know Best ããã®åç
What a lovely review, thank you Jason! Iâm glad everything was sorted for you quickly, and I'll be sure to pass your kind words on to Peaches and the team.
Take care and best wishes,
Lisa
ð§: help@patientsknowbest.com
Patients Know Best
Got the job done
I have been going to many different departments and trusts trying to get details for over four months. I have requested SARs and gone through multiple layers of information request databases⊠only to receive nothing that is of use.
I eventually got through to peaches at patients knows best, the NHS itself has taken four months to not complete the various requestsAnd still has a waiting list of over nine months.yet peaches somehow managed to get 80% of the information I required in less than three weeks. The only things I donât have are handwritten records and original ECG results printouts
I would say have your patience nose best IDs securely available somewhere in case you ever become unconscious for a length of time and people canât access your details properly or if you get brain damage and forgetbecause thatâs what happened to meâŠ.
2026幎1æ6æ¥
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Patients Know Best ããã®åç
Thank you so much for sharing your experience. Iâm really pleased that Peaches was there to help you access the information you needed, to make such a difference after all that time. If you ever need support with your record, weâre here to help.
Take care and best wishes,
Lisa
ð§: help@patientsknowbest.com
Patients Know Best
Utterly pointless
Utterly pointless:
this app is designed so that stupid nhs trusts can delay, in my case *more than a month* , releasing certain information to patients. This includes a blood test for possible prostate cancer, and simple x rays reports. Itâs well known that a monthâs delay in starting cancer treatment can mean a 10% reduction in survival, so patients need to get that (PSA) result asap, so they can ask their GP for a retest, to check that any spike is just temporary, not a sign of cancer. Yet PKB facilitates this nonsensical behaviour. And my local trust wonât even tell me who at the Trust makes these stupid, dangerous decisions.
PKB, please publish here who exactly at my Trust, uhsussex, makes these decisions. This trust is just delaying the release of my results to me, and many other patients of my GP, because it can.
Utterly pointless, not least because patients will simply contact their GP and hospital departments to get the results.
The app is called âPatients know bestâ, not âTrusts know bestâ
2025幎12æ19æ¥
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Patients Know Best ããã®åç
Hi Steven, I wanted to acknowledge this review and note that you contacted our support team directly at the time. Iâm really glad you did, as we were able to advise and share the contact details for raising your concerns with the Trust.
Just to clarify: a clinicianâs access to your results is never affected by any delay in PKB, itâs a patient-facing restriction only. The requesting clinician receives results from the lab immediately, so there should be no delay to care, diagnosis, or treatment.
PKBâs default approach is to deliver results directly to patients as soon as theyâre available, providing immediate access. Where a Trust applies a delay to specific test types, weâre required to respect that and follow their configuration. However, weâll still notify the patient that a result is ready, even if the value is temporarily hidden. You're then free to follow up with your GP or hospital team, though some results may not be accessible to reception staff until a clinician has reviewed them.
Thank you again for sharing your experience and feedback. We advocate for greater transparency and patient access wherever possible, and weâre always here to support with any technical issues in your record.
Best wishes,
Lisa
ð§: help@patientsknowbest.com
Patients Know Best
Brilliant service x
Brilliant service, dealt with my issues quickly
2025幎12æ2æ¥
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Patients Know Best ããã®åç
Thank you Christine, Iâm really glad we could help to get things sorted quickly for you. We really appreciate you taking the time to leave a review!
Lisa
ð§: help@patientsknowbest.com
Patients Know Best
I would give it zero stars if I could
I would give it zero stars if I could. There is no way I can ever log in to this thing: there are apparently several ways you get log into the app, but none of them ever works!!! Iâm sure someone will now write a lovely,supportive reply to my review, just as they always do to respond to all the bad reviews( of which there are loads!! And none of it will matter anyway, as obviously nothing is ever being done in order to help the app work better!!)
2025幎12æ10æ¥
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Patients Know Best ããã®åç
I'm sorry Irena, I can hear how frustrating this has been for you. Login issues are genuinely something we can help with.
PKB has one main login page, where you can sign in using the username and password you set up at registration. Some people choose to link their NHS login as an additional route. Occasionally, NHS login setup can fail if your details match up with more than one record, and thatâs something we can absolutely help you to resolve.
If you're already registered but are struggling to reset your password, we'll connect you with the right team to sort that out quickly.
Please email help@patientsknowbest.com with the subject line âTrustpilotâ, that way we can make sure itâs picked up promptly by the team.
Best wishes,
Lisa
ð§: help@patientsknowbest.com
Patients Know Best
Very supportive and professional ionalâŠ
Very supportive and professional introduction to CBT. Even though it was my 1st session,I am now more knowledgeable and informed regarding thought processes and behaviour changes. The health care professionals providing CBT are exceptional, professional and kind.Also the insight and support from my fellow patients is invaluable and so productive going forward. Very lucky to be a part of the programme.
2025幎12æ8æ¥
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Patients Know Best ããã®åç
Thank you so much for your review, itâs great to hear how positive your experience has been, and weâre really glad PKB could play a part in helping you along the way.
Best wishes,
Lisa
ð§: help@patientsknowbest.com
Patients Know Best
Share your information between healthcare providers
It was frustrating at first as I had forgotten a Trust in another area had registered me so I got completely confused when 'registering' as the first Trust came up. However, upon making my query clear in contacting the team, they were really helpful and told me where to find their Trust on the portal as currently, the original one shows up on the main page and they can't change it.
It's really important to share your information between providers as one provider may have some information that is relevant/vital to diagnosis/treatment with another provider.
2025幎12æ8æ¥
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Patients Know Best ããã®åç
Thank you so much for your review, and for sticking with it despite the initial confusion. Iâm really glad the team could help clarify things and guide you to the right place in your PKB record.
We couldnât agree more with your point about information sharing between providers, we want patients to be able to manage that sharing easily and feel in control, it's exactly what PKB is here to support.
Best wishes,
Lisa
ð§: help@patientsknowbest.com
Patients Know Best
50% of my medical informationâŠ
50% of my medical information appointments, medication, history, the list goes on.is missing from this site and Itâs so difficult to navigate and impossible to get the information you need. I canât understand why my practice are still using this platform. And it interferes with my NHS platform.
2025幎11æ5æ¥
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Patients Know Best ããã®åç
Sorry Nick, I understand feeling frustrated if some of your information isnât there yet. PKB provides the platform for clinical teams to share health data with their patients; our aim is for every person to have meaningful access to their own record. What currently appears, however, depends on the information that your GP or hospital has chosen to share. Some use our full functionality and share all types of information, while others introduce it in stages.
PKB certainly shouldn't interfere with your NHS services. We're fully integrated with the NHS App and NHS login. If something doesn't seem right, please get in touch at ð§ help@patientsknowbest.com; weâd really like to understand more and help. You may also find it helpful to look through our user guide for tips on navigating your record: manual.patientsknowbest.com
Best wishes,
Lisa
ð§: help@patientsknowbest.com
Patients Know Best
Awful awful awful you cant get accessâŠ
Awful awful awful you cant get access to your records or messages this is set up for your data to be given to anyone with computer knowledge and get your personal information
2025幎11æ4æ¥
èªçºçãªã¬ãã¥ãŒ
Patients Know Best ããã®åç
Hi there,
Iâm sorry this has been a frustrating experience.
Your PKB record is protected to NHS-level security standards, and all clinical data is encrypted, both when it is stored and when it is in transit. Only those with permission can see your record, and you can permit or revoke access at any time via the âSharingâ page.
PKB doesnât sell or share your data, nor allow open access. We're a B Corp and social enterprise, with a mission to give patients access and control over their health record data.
If you've recently registered and there's very little data showing, itâs likely because your teams havenât started sharing data yet, or theyâre releasing data in phases. If you're having trouble accessing your information, or need any support at all, please contact us on the email below. Weâre here to help.
Best wishes,
Lisa
ð§: help@patientsknowbest.com
Terrible
Terrible. Limited data. Hospital appts not often recorded or letters and outcome or imaging etc.. Compared to âMyChartâ which is outstanding in every way.. why donât all NHS hospitals use MyChart????? Must be cost is all i can think of.
2025幎10æ23æ¥
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Patients Know Best ããã®åç
Hi there,
I understand itâs disappointing to log in and find that some information isnât available. To explain, PKB provides the secure platform, but the information you see depends on what your connected healthcare organisations are sharing at this time. Some providers already share a wide range of data types, while others are taking a more phased approach.
If youâd like, weâd be happy to check whether your local service has plans to release more data types in the near future. Weâre here to help.
Lisa
ð§: help@patientsknowbest.com
Patients Know Best
Great user experience
Great user experience, really great to have all my data in one place.
2025幎10æ11æ¥
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Patients Know Best ããã®åç
Hi Emily,
Thatâs lovely to hear, thank you for taking the time to share your experience! âïž
Lisa
ð§: help@patientsknowbest.com
Patients Know Best
Absolutely horrible service
Absolutely horrible service. I have not been able to access my important medical records for over a year now. My account has frozen and every attempt to reset fails. I have complained many times to no avail. You cannot call them. This is a complete waste of public money and no-one is held accountable for the appalling service that they provide.
2025幎10æ8æ¥
èªçºçãªã¬ãã¥ãŒ
Patients Know Best ããã®åç
Hi Jules,
Iâm so sorry to hear youâve had such trouble. Weâd never want to leave someone stranded. I canât find a support ticket under the name youâve used here, but please do contact our support desk via help@patientsknowbest.com, weâd really like to assist.
As you're unable to pass the security check for the password reset, the PKB admin team at your local NHS Trust can manually verify your identity and reset your password and security details for you. You can find their contact information on our help pages: support.patientsknowbest.com (search: "contact details for password enquiries").
Alternatively, if youâve previously accessed your PKB record using NHS login, you can sign in again using those details instead.
Please donât hesitate to get in touch, weâre here to help you.
Best wishes,
Lisa
ð§: help@patientsknowbest.com
Patients Know Best
If I could have given no stars I wouldâŠ
If I could have given no stars I would have done!!
What an awful idea, who came up with ths crappy system, you cannot find anything that you actually want. There are no obvious ways to get to any of your own test results.
It is truely an awful system!!!
2025幎10æ8æ¥
èªçºçãªã¬ãã¥ãŒ
Patients Know Best ããã®åç
Hi Ann,
I'm really sorry to hear youâve had a frustrating experience. Thatâs absolutely not how we want patients to feel when using our platform.
PKB is designed for the patient to have real-time access to their health information The test results page is one of the most visited areas on the platform, and we release around 20 million results every month for patients to view.
Your PKB record reflects the data your healthcare providers have chosen to share with you at this time. Some organisations are fully integrated and using all the features PKB offers; others are rolling it out in phases, which can affect what you see and when.
Weâd be very happy to guide you through what should be there, where to look, and what to expect. Please send us a message ð§:help@patientsknowbest.com and weâll do our best to help.
Lisa
Patients Know Best
support.patientsknowbest.com (help desk)
wiki.patientsknowbest.com/space/MAN (user manual)
Our Dr surgery knows nothing about thisâŠ
Why do our actual doctors not know about this website? We can already access our info on the NHS app. Isnât this just another way of spreading our information around and having too much detail out there? Whatâs wrong with the NHS app
2025幎10æ3æ¥
èªçºçãªã¬ãã¥ãŒ
Patients Know Best ããã®åç
Thanks for your feedback. Your GP practice may not be actively using PKB to share data with you at this time, though every patient in England can retrieve their GP data into their PKB record via NHS login. If you received an invitation to register with PKB, itâs likely this came from your hospital or NHS Trust, rather than your GP. You can check which organisations are sharing data with you by visiting the âSharingâ section of your PKB record.
PKB and the NHS App work together, PKB was the first personal health record integrated into the app. In many areas, you can access your PKB record directly from within the NHS App using your secure NHS login, providing a single front door to more than just GP data, including hospital appointments, test results, care plans and more.
Your information is held securely, and only NHS teams involved in your care, or those you choose to share with, are permitted access to it. If youâd like help checking whatâs available in your area or how your local teams are using PKB, feel free to contact our support team. Weâre happy to help.
Lisa
ð§: help@patientsknowbest.com
Patients Know Best
seems a waste of public money
seems a waste of public money, nothing is relevent or up to date, the discuss tab on prescriptions leads you nowhere, unable to discuss anything.
2025幎9æ29æ¥
èªçºçãªã¬ãã¥ãŒ
Patients Know Best ããã®åç
Hi Jean.
Sorry that you're not seeing the information you expect, I completely understand why that would feel disappointing.
Just to explain briefly: PKB provides the secure platform for your health record, but it's your healthcare teams who manage the data shared, and decide which features to utilise. If your record appears to be limited, it usually means data sharing hasnât been fully set up yet by your provider. For example, you might see clinic letters, while other types of information, like test results, arenât yet feeding through.
PKB supports secure messaging, so patients can contact their care teams from within their record. However, if this feature hasn't been enabled by your teams, it would explain why youâre unable to start a discussion with them at this time. If thereâs something youâd like to see in your record or a feature you wish could be utilised, we recommend informing your care team and/or the local PKB team at your hospital, as patient feedback can influence what services are prioritised.
If you need help finding the right contact details, or if you'd like us to confirm what's currently available in your area, please get in touch with our support team, we're here to help!
Best wishes,
Lisa
ð§: help@patientsknowbest.com
Patients Know Best
I received to text from pkb 13/09/2025hemâŠ
I received to text from pkb opened them only to find i have moved from worthing west sussex to croyden 42 miles away i have tried to change the address but not able to, then i tried to login to my account did not recognised my password this is ever time i try to login i have the same password.
This has taken 2 hours to open pkb give your self a big pat on your back for a crap job not well done.
2025幎9æ14æ¥
èªçºçãªã¬ãã¥ãŒ
Patients Know Best ããã®åç
Sorry to hear this, Allan!
If you've previously used NHS login to access your record, this is the quickest way to log back in.
If this is not an option for you, please reset your PKB password. If you're unable to remember your security answers, contact your local PKB team to regain access: https://support.patientsknowbest.com/en/support/solutions/articles/11000130677
In PKB, you can see the personal contact details that your hospitals, GP, and other providers have on file for you. This makes it easy to spot and fix any outdated information with them directly, ensuring your records are always accurate. Any updates you make with your providers will automatically show up in PKB.
To review the organisations connected to your record, please navigate to the sharing section.
For further assistance, please contact our support team, we're here to help!
Best wishes,
Lisa
ð§: help@patientsknowbest.com
Patients Know Best
Could not Register with PKB
I was having difficulty registering for PKB. I emailed, and was talked through - via email - what to do. Eventually my wife took over as nothing was working out, daily emails for over a week, until eventually I was able to Register. Many thanks to Peaches Wilkes for her fantastic patience with us, and her knowledge at sorting out the problem!
2025幎8æ21æ¥
èªçºçãªã¬ãã¥ãŒ
Patients Know Best ããã®åç
Thank you for sticking with it, John! Itâs great to hear that you reached out to our support team, and that Peaches was able to guide you through registration. Iâll make sure your kind words are passed on to her.
Really appreciate you taking the time to leave a review. If you ever need support with your PKB record, please donât hesitate to get in touch ð
Lisa
ð§ help@patientsknowbest.com
Patients Know Best
Inportant documents that I could not download
I had a very inportant appointment at the hospital they sent me a letter to which I could not download. Which is very frustrating especially as it's to with your health. I could not get into app as it was saying it was wrong password. I filled out a form to get a ticket to complain and get help cancelling the app I did this 3 times and knowone bothers to get back to you. This app is not good and in my opinion it's just another way for the government to make money. I need to someone to contact me and give me instructions to cancel app and delete my personal information to do with my medical history. If not I'm going to my local mp to report this I'm not happy what is point of having if you can never see your medical notes it's useless
2025幎8æ18æ¥
èªçºçãªã¬ãã¥ãŒ
Patients Know Best ããã®åç
Iâm so sorry for the frustration youâve had trying to log in, and for the delay in our response.
I believe weâve replied to your support ticket with step-by-step guidance on how to access your record or reset your password. We've also sent the contact details for the local PKB support team at your hospital, as they can help directly with login issues, record access, and anything that needs verifying.
Please donât hesitate to get back in touch if you need anything else, weâre here to help.
Best wishes,
Lisa
ð§: help@patientsknowbest.com
Patients Know Best
Patients Know Best ããã®åç
Great to hear it! Thanks so much for leaving a review ð
Lisa
ð§: help@patientsknowbest.com
Patients Know Best
I couldnât download consultants letters.
2025幎8æ21æ¥
èªçºçãªã¬ãã¥ãŒ
Patients Know Best ããã®åç
Hi Patricia,
Sorry to hear that. Could you kindly contact our support team and let them know more about the issue, for example, whether the letters werenât available in your record, or if something went wrong when trying to access them?
PKB provides the platform, while itâs your healthcare team who decide what information is shared. If somethingâs not working as expected, we're here to help. You can reach the support team: at help@patientsknowbest.com
Best wishes,
Lisa
ð§: help@patientsknowbest.com
Patients Know Best
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